Pink is a color of Fall!

I have always loved fall. I love the crisp air. I love sunny fall days. I love the fall colors of red, orange, yellow, brown and pink! It is October. You know what that means.....fall, football, and Breast Cancer Awareness Month! I love pink in the fall. Sure it has taken away from decorating for Halloween a bit, but I will take it. Pink is my new favorite color and October is the month to celebrate that.

 This year I feel so much more at peace with this. Last year, I think I was still a bit reluctant to participate as a Survivor. I was still in the beginning..well 6 months in...to treatment. But now, with my diagnosis of no evidence of active cancer I feel that I want to let everyont know that it is Breast Cancer Awareness month! I am still here! I am still fighting! and I am a SURVIVOR! 

Next week, I have another scan to see how things are again. Am I nervous? Maybe a bit. But not as nervous as I have been before. But why wouldn't I be nervous? There is always that little bit of wonder when you go in. It is human nature I think to have a little self doubt. But I just tell myself that it is all good! It has to be. And besides I have conferences at the end of next week to take my mind off it. It is all in a day's life for me. Get up...take my cancer pills...go teach kindergarten...take my kids to soccer....make dinner....go to bed...wake up and do it all over again. That is my life. And then every three weeks I go have my infusion of Herceptin. It is a bit odd I will admit. I park at the end of where I take my students to the busses. Walk across the street to where I park on those Fridays and leave to go enter another world. The cancer, infusion world. I have to say, so far it has been welcomed. It is nice to just sit for that hour and relax. I bet that is a first. Someone thinking that an infusion is relaxing. But it is. I am forced to sit and put my feet up. Last week I had a cold so I got an isolated room with a bed. I laid back and enjoyed the quiet. Because just and hour before that I had been getting 24 kindergarteners packed up and out the door! But again..It is what it is! It is life. Yes, sometimes it is a struggle to know that I am still sick on the inside but looking fine on the outside. But mostly, it just makes me grateful and lucky that I can celebrate and walk around as a survivor.

Well, I just wanted to update a bit. Most of you follow me on facebook too so you know what is going on. But for those of you I don't see on facebook.... I am doing well. I am awake. I am alive and I am blessed......now if someone could just pay my bills it may truly feel like heaven.
That about sums it up!




 Portrait of me from a student! Pink of course!

Still rocking the pink tutu!


 LOVE!



 Still my reality every three weeks! But I still fight!


 And a Pink Ribbon for Breast Cancer Awareness month!

No Evidence of Active Cancer......But......

Why is it that each day seems to pass slowly, but when you look back you can't help but ask "Where has the time gone?"

 February 6, 2012 was one of the worst days of my life. "You have cancer."

 But, April 29, 2013 was one of the best.."No evidence of active cancer." Words really can't express how you feel when you hear that. I was actually a bit numb and at a loss for words..yep, I did not know what to say. Especially since I knew what was coming next. "Treatment isn't over"

That is one of the misconceptions with cancer. Just because the cancer is not active at this time, we don't stop treatment. And for me, and my type of cancer, means we don't stop treatment for quite awhile. In fact, we don't have an end date. We are in the maintenance phase. We don't stop doing what's working. We don't want those cells to grow back. In fact, I am writing this on my phone as I sit in the treatment chair.

 It is a whole different mind set at this time. Mostly, I do get a little ticked off. Especially since the outrageous bills keep rolling in. That is what pisses me off the most. Bill after bill. And some of the people aren't very nice when I call to make arrangements for payment. I am so grateful for all donated in the beginning. It kept us going. But with my medical bills, Nicks ACL surgery and now Evans injury, it is more than I can take sometimes. And we have insurance, I can hardly stand to think what it would be if we didn't. And of course we are middle class so the availability of aid is non-existant. And we know what teachers make, let alone a substitute. I don't have sick days to take. If I don't work I don't get paid. But enough of that.

 So, although I am elated that I have so far kicked cancer's a$$, It is bittersweet because treatment continues. But I will choose this, and all the side effects that come with it (the sores in my nose are the worst) because I choose life. But what I do know is that it is the cost that makes me more discouraged than anything. But I will do what I will continue to do, trust in the Lord. Trust that everything, including finances, will work out. So, I will just continue to repeat my favorite verse and all will be okay! "I am not alone for the Lord is with me." John 16:32

Happy Cancerversary :/

Well, here we are. One year later. Today is my one year anniversary of diagnosis. One year ago today, I heard the worst news anyone would ever want to hear. "You have cancer." My life felt turned upside down. I remember being so scared of the unknown. I was entering a new path of my life in which I had to give up a lot of control. I have said before how I don't like surprises and this one was a biggie! For the last year I have had to give up that control and just trust that what the doctors were doing and that all the prayers out there was working. 

Well, I can say with certainty that It Is WORKING! Although I am not completely free of disease, I can say that it won't be long until I am. 

At one point I never thought that could be possible. I was stage 4 just 12 short months ago. This cancer had metastasized to parts of my body in which it was not possible to cut it out. "Traditional" chemo did not work for me. My strain, type, etc. was resistant to many types of chemo drugs. So, I chose a non traditional chemo and decided to starve this cancer by eliminating from my body what fed it....estrogen. With removal of my ovaries and nine months of heavy drugs at home (Tykerb and Femara) and infusion of Herceptin, now every three weeks, I am starving this cancer right out of my body. 

As of my last scan, there was just a little nugget visible in the lymphnode (and I should add that there is still mysterious showings on my spleen). But, this cancer is leaving town. And that lump in my breast, IT IS GONE!!!!

It hasn't been just me going through this, however. Sure, I am the one with the aches of an 80 year old. I am the one with the hot flashes of a menopausal woman, and the unmentionable trips to the bathroom. But it is my family that has gone through this too. And my huge support system of friends and family that have prayed for me, brought my family food, taken my children to practice. And most of all my husband who has been there and cried with me. 

My journey isn't over, but we are getting there. I have to change my mindset now and realize that this is a chronic disease that I have. Much like diabetes or MS. I have to live with it every day and fight to make myself better. I live with the side effects of the meds because that is just how it is. I eat healthier (try to) because this is what is working. 

So keep following me, because I am not done. I have more to do. I will rejoice the day my scans finally say NED (no evidence of disease) But until then, I will keep on going, because there just isn't any other choice. And I will keep singing my song..courteous of Kelly Clarkson..because "What doesn't kill you makes you stronger" and this cancer definitely has. 

surgery day

"Have I not commanded you? Be strong and courageous. Do not be terrified; do not be discouraged for the LORD your God will be with you wherever you go."  Joshua 1:9

And a few pics of the last year.....

A bunch of crazy people walking in the rain for me! 

my MOPS ladies! A fun reunion!

my niece Emma in her "Aunt Donna Shirt"

Someone I barely know walking in my honor

Zumba!

my Vegas Family!

9 months

I can't believe it has been nine months since that awful day of my biopsy. Nine months today. It feels so long ago, and yet it feels just like last week. So much has happened in nine months. There have been many ups and downs in these nine months. Good days, bad days, and just days. I now it has been a long while since I have posted anything. and believe me, I have been scolded for this. But life was going on. Summer came and went. School started. I am working (subbing) again. Soccer season is almost over. And now, just like that, it is November. Twenty days until Thanksgiving. 53 days until Christmas. But really, I don't want to think about that. I am focused on November 21. I will have another scan. The last scan I had was promising. The cancer was no longer visible in the chest and neck lymph nodes. But still very prominant in other lymphnodes. I am still going to chemo infusion every three weeks. And, I take my tykerb and femara daily. I have now added aleve to my daily drug intake. My meds are making my joints ache like arthritis. I look like I am 80 every time I get up. Most days I am doing alright. Aside from the fatigue that hits about 7:00 every evening. I get through my days. But with that said, cancer  is overwhelming and I want it to go away. I didn't ask for this. So, why am I the one going through this? Why am I the chosen one? I can ask myself these questions over and over again, but I doubt I will find the answer. I like to just say it is what it is. That has been my motto for many things that have ever gone on in my life. I am not complacent, or in denial. When a hill comes along, I climb it. When a struggle comes along I deal with it. There is no room for a pity party. Don't get me wrong, I have my moments. But they last just long enough for me to get the angst out and then deal with it. Is there any other choice? So, I have done just that..gotten over my moments and keep living life. Keep going to soccer games. Keep taking care of my family. Keep on going.

When I keep on going, I am busy. Busy with life. I didn't think I had much to say. Truth is, I wanted everything I say here to be inspiring. I haven't felt like I had much to say that was inspiring and that others would want to hear. I actually received an email from someone I didn't know. They had been reading my blog and were concerned that I hadn't written in awhile. Then a couple of other emails came. Some calls from some ladies at church. Another card in the mail from someone saying they were thinking of me. Then, I realized, there were more people invested in this, my cancer, than I thought. So, here I am. Back and letting you know how I have been. And all in all, I can say I am doing well...or as well as expected. In fact, to see me, you wouldn't even know anything was wrong. I don't look the part.

Cancer is a funny thing and people expect you to look and be a certain way. You see, I still have my hair. I guess I am the lucky one. And believe me I have heard this many times. "You still have you're hair. You are so lucky." Losing your hair seems to be the mark of cancer. Well, I don't do things normally. So, that's not my mark. I haven't even lost any weight. On the contrary, I am puffy and have awful nails. But my skin is looking good. I have to say it almost makes me feel guilty walking into the infusion center because I just don't look the part. But like "they" say, you can't judge a book by its cover.

Well, I hope to add more posts more often. And thank you everyone for thinking, praying, and worrying about me. It is humbling. I truly know I couldn't be going on without you. And Thank you God for watching over me and my family! Thank you!


"The Lord will watch over your coming and going both now and forevermore."
                           Psalm 121:8





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Short but Sweet :)

Oh happy day! 

We all know the words to this song...

Oh happy day, Oh happy day
When Jesus washed
Oh when he washed
He washed my sins away

He tought me how
to watch, fight and pray
fight and pray
Oh happy day, Oh happy day
When Jesus washed
Oh when he washed
He washed my sins away

We´ll live rejoicing
ev´ry day, ev´ry day
Oh happy day, Oh happy day
When Jesus washed
Oh when he washed
He washed my sins away

Yes, We all know the words to that song. In my head I am singing the Sister Act version. It is a happy day. 

I went to my oncologist yesterday. Things are promising. Although I have not had a complete scan yet, it appears that my treatment is working! The lymph nodes in my neck and the largest one in my arm pit feel visibly smaller. YAY! So, I will take the endless hot flashes, headache, nausea and tiredness if it means that we are killing this cancer!

I will have a complete PET and CT scan in July. But for now I will lean on this hope! All the fightin' and prayin' is working! Just like Jesus taught me!

The LORD is my strength and my shield; My heart trusted in Him, and I am helped;Therefore my heart greatly rejoices,And with my song I will praise Him. Psalm 28

Thank you Lord, Thank you Jesus, thank you everyone who is praying and fighting with me! Let's keep it up!

Keep on keepin' on!

Well it has been a few weeks since I last posted. Nothing has happened and so much has happened all at the same time. I'm still here. I am still hanging in there. I have a few more cuts on me. I like to think of them as war wounds. Since this is a battle I am fighting.

I know it has been awhile, 42 days to be exact, since I have written anything. I don’t really know why. There is a lot going on in my head, but I just haven’t been able to get it all out. And although I haven’t written anything here, I have been able to talk it out and vent with some dear friends. But I think too, I needed time to just be in my head. I needed the time to retreat into myself and just think about all that is going on. I needed “me” time.

I needed time to think. Cancer is overwhelming. And it is not just the fact that I have a disease in my body that I could potentially have for a very long time, but everything that goes along with it is overwhelming too…..the good and the bad. It is such an emotional roller coaster of everything. The actual disease, scheduling doctor appointments, going to said appts, surgery, infusion, recovery, being present for my kids, trying to just keep moving on in a normal way, the outreach and support from others, answering every one’s questions and educating them on my decisions, taking well meant advice, going on with life, going to sports games, paying bills, new bills, and really just figuring it all out. It is overwhelming just writing it all.

I know I have a lot of support. That is very evident. But when I go to the doctor and sit in that room, or when they poke me for the hundredth time, or when I am talking to the lady from the utilities trying to explain why the bill will be late, it is just me. I know that usually someone (Nick) has been physically with me. But it is still me and my cancer. This damn cancer that has changed my life. I can get mad about it. I can retreat into myself and wallow for a bit. BUT, I also know that it is what it is. Then, I snap out of it, and remember that the support of friends and having God on my side is all I need. But, I still have to remind myself of that.

I am a giver not a taker. I am the one who takes the meals and runs the race. So, having everyone do so much for me lately is hard for me. I am very grateful. Because honestly everything that has been done…the walk, raffle, auction, zumbathon, pampered chef parties, reunions, meals, etc. has truly helped me and my family. And for that I am truly appreciative. It really is still hard to believe that it is being done for me, but I have learned to accept the help and I am trying to feel worthy.

So where am I now in my treatment? Well, I am doing a hormone therapy right now. (Not hormone replacement) I had surgery April 11^th to remove my ovaries. Why? To stop the flow of estrogen in my body. My cancer is fed by estrogen, so we are starving this cancer. I have had three chemo infusions. I take a daily dose of a heavy drug called Tykerb(lapatanib). And I also take Femara (letrozole). Another drug to stop the production of estrogen in my body. I’m going this route right now to try and get the cancer out of my lymph system and chest wall. Hormone therapy tends to cause fewer and less severe side effects than traditional chemotherapy. But it is not without side effects. I am very TIRED. My energy level drains quickly in the evening. I visit the bathroom a lot for various reasons. I don’t sleep well. I have hot flashes galore. I have headaches and sometimes blurry vision. And on and on. Luckily,(and my rainbow)I have escaped the awful side effects for now. I still have my hair. Although, I do notice more on my hair brush, and I do not have the horrible rash that the Tykerb can give you. But I am not counting it out yet. Other therapies such as radiation and other chemotherapies are not ruled out. We are just going this route for now. A surgery for mastectomy is about a year away. So I get to carry these melons around for a bit longer. I am in this for the long haul.

I have learned a lot these last few months. I am learning more about the different types of cancer and just how individual cancer can be. This is more than I ever thought I would know about breast cancer. Yes, it is overwhelming, and I really do know that I am not going it alone. I am still in awe of all the support that is there. But, if I don’t tend to write all that much, it just means I am thinking. 

So for now I am going to just keep on keepin’ on. 

Quote Book Pic

Mother's Day Gifts!

Here We Go!

Well spring break is over and we are on the down hill slide to summer. This spring break went pretty well. It was a successful "stay cation." I took the kids to OMSI, played miniature golf, went shopping at a few malls and Nick took kids to the mountain. We ate out entirely too many times, got to see how wonderful life can be with so many people to love and support us and will literally walk in the rain for us, saw Wicked, had sun for Easter and had my first treatment. All in all a good break.

Except for the treatment part.

Just when I think things are feeling normal, something with this cancer reminds me that "normal" has changed. And this first treatment was a little rough. I received my first dose of herceptin through IV. Granted it isn't the knock down drag out hard core chemo that some receive. But, it is still pretty hefty stuff. And of course, I got all the joys of some side effects that only happen to a small percentage.....like sweats, chills, fever, nausea, and other unmentionables. But the worst was the headache that lingered for a few days. I don't function well with a headache. They say the next dose should be better as the first dose is like triple strength. I go back for that in a few weeks.

In the meantime, I go in tomorrow for my oopherectomy and port placement. Oopherectomy is a big word for having my ovaries out. (got to stop that estrogen!)And the port placement will make my future IV treatments easier so they don't have to constantly be finding a vein to stick. Unfortunately, it will be just another constant reminder of the cancer I have. I considered not doing it. But the pros outway the cons here. It will just make some things easier. Who knows how many IV treatments I will need down the road.

That's about it. I have so much to say but my eyelids are heavy. I will just leave with this..... Isaiah 12:2 "Surely God is my salvation; I will trust and not be afraid. The Lord, the Lord, is my strength and my song; he has become my salvation."